My life with Fibromyalgia

Living with the chronic pain of Fibromyalgia

Fibromyalgia and Neck Posture January 17, 2010

I recently stumbled upon this video that seems to explain a great deal of my own Fibromyalgia story.  My very first complaints were that of neck pain.  My physical therapist said I had forward head posture more than likely worsened by soft tissue damage from an auto accident.  It makes complete sense that if your spine is not aligned correctly, it forces more pressure on certain nerves.  This may be why our limbs are always going numb and we get pain surges up and down our bodies.

The doctor also speaks about the over medication of most Fibromyalgia sufferers and I totally agree.  We are given more and more prescription drugs and all they do is end up treating the side effects of each new drug.

I am going to do a little more research on the subject and report back on the validity of this argument, but I may have just found someone who truly can cure my Fibromyalgia.  Please feel free to add your thoughts and/or experiences with new treatments…I am grasping at straws because this is no way to live and I just cannot accept it today!

 

The Best Treatment for Fibromyalgia is Humor so here goes: A Country Song for Fibro January 15, 2010

Filed under: Uncategorized — cwatersart @ 11:01 pm
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I realized for just a moment today that my life seems more like a country song than anything else now that I have Fibromyalgia.  You know… lost my dog, lost my wife, lost my car, lost my job!!!  Only it would be more like this:  (Let me preface with I am NOT a song writer)

“I Lost My Sanity…Maybe it’s in The Refrigerator?

You don’t have to touch me today, do you?  I hope not, cause I might lose it if you try…You see I can’t take the slightest pat on the backside…get any closer and I might have to cry.

It’s the Fi-i-i-i-ibro Fog!  It makes me fee-ee-ee-eel like such a wreck!  I want a tissue for my nose, but get a pair of panty hose and decide to blow it anyway, what the heck

You don’t need a home cooked dinner, do you?  If  so you’re gonna have to cook it for  yourself!  It’s alright with me if you do, just to get some rest..an hour or two would be worth all the bitchin you’re gonna do!

It’s the Fi-i-i-i-ibro Fog!  It makes me fee-ee-ee-eel like such a wreck!  I want a tissue for my nose, but get a pair of panty hose and decide to blow it anyway, what the heck

You see…today I lost my phone my keys my car my man and the  little bit of sanity that I had left.  Ordered a combo meal at the bank and made a deposit  of a hundred at the local drive through Mickey D’s.  I got it all wrong but it seemed so right until I realized I was losing in this fight.

It’s the Fi-i-i-i-ibro Fog!  It makes me fee-ee-ee-eel like such a wreck!  I want a tissue for my nose, but get a pair of panty hose and decide to blow it anyway, what the heck

I’m gettin to the  end of this little country song, about somethin that will plague me for my whole life long.  I just hope they find a cure before I lose again and find my car keys in the door, my phone in the fridge, my man where he belongs, and my sanity….well I ain’t found that one yet!!!!

 

What do Fibromyalgia and Ducks Have in Common? January 13, 2010

Filed under: Uncategorized — cwatersart @ 12:20 pm
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I was recently approached on Facebook about changing my profile image to a duck to promote support of Fibromyalgia awareness.  At first, when I began to hear about the fibroduck… “movement?” I wasn’t sure what ducks had to do with Fibromyalgia.  We’ve all seen people posting their bra colors in support of breast cancer awareness, but I get that one!

After doing some research, I came upon the analogy of a duck out of water.  It makes perfect sense that a duck functions better in water gliding over a smooth lake than on land waddling and squawking about without a purpose.  This is exactly what happened to me when I began to develop symptoms of Fibromyalgia.  I went from being a very active, creative, optimistic  member of society cruising past as many obstacles as possible into feeling uncomfortable in my own skin.  I could no longer do the things that made my already hectic life run smoothly.

Imagine going from walking on the beach to standing up on a boat in the ocean.  I can stand up and walk on a boat, but even though I love the water and boating it will never feel as natural as walking on solid ground.  Everything about my life has changed.  Even seemingly easy tasks are awkward and challenging for me like a duck pecking for pieces of bread thrown to the ground by eager children.

Fibromyalgia truly has changed my life.  It is also affecting so many others world-wide.  It is up to us(sufferers) to enlighten the world to our struggles and force the scientific community to do more research.

Show your support with a “Fibroduck”.  Go to the following link and order one today.  The duck is free but a small shipping charge will apply.

http://www.fibroduck.com/

 

The Fight January 12, 2010

Filed under: Uncategorized — cwatersart @ 4:03 pm
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I can’t help but hear the words of a favorite Fiona Apple song in my head today “…I’m a shaddowboxer baby….I’ve been swingin round me ’cause I don’t know when you’re gonna make your move…”  Does it ever seem like there’s some invisible opponent taking swings at you?  I’m in a battle with a pretty strong shaddowboxer….it’s Fibromyalgia.  Some days I can fight back just enough to think I’m OK, but days like today…I am too tired to fight. 

I got sent home from work today because I didn’t seem “allert” enough to teach art to elementary kids.  They didn’t understand that once the “happy pill” kicked in, I would be a ball of sunshine for at least 3 hours.  Boy did I need my boxing gloves for that conversation.  I was very tired this morning but this was truly a punch that came from nowhere!  How should you respond when you start getting sent home from work because of something that is completely out of your own control?  I’m just too exhausted to get in the ring on this one, so I’m gonna sit it out today. 

God, please help me to understand your plan for this life.

 

Fibromyalgia: Ending the “Sick Person Defense” January 11, 2010

I have been on a never-ending quest to reclaim my pre-fibro life, although it seems that may never be an option.  How did I go from being an active, professional, functioning member of a family and society to being a home-bound, socially challenged, drain on them?  The answer is simple, I gave in to the disease.  I allowed it to define me and limit me.  I did it because I had to. 

We create survival mechanisms when constantly placed in difficult/harmful situations, and I arm myself with “The Sick Person Defense”.  It was and is necessary for me to rationalize shortcomings to others because  before FM , success was dependent on my creativity and ability to work well under pressure and meet deadlines, thus pleasing the people around me.  Fibromyalgia has now turned me into a frantic, scatter-brained, anxious, unprepared  mess.  I let people down on a daily basis, and this stresses me out. 

What now?   How do I (we) let go of our “defense” and add some life into our lives?  I have written a list of some things that I am willing to try:

1.  Come to terms with the fact that I am sick and that requires lifestyle changes (this doesn’t mean moping around all day with zero productivity).  It means that although I may not want to change my diet or my sleep habits, I WILL to change the way I feel and take control of this terrible illness.

2.  Stop focusing on the things I can’t do.  I am very creative and love to make things.  I may not be able to work at the pace I used to, but I can work, and that is a blessing from God! 

3.  Keep a journal.  This has many purposes.  I can write dietary/medication information from each day to see if certain foods/medications/vitamins are having an effect on my flares.  The journal is also a place to record how I am feeling each day (great for Dr. visits) and ideas that I have.

4.  Set reachable goals for each day/hour/week and log them in my journal.  It is not possible for me to do everything I used to do, but if I focus on completing tasks that are more realistic, such as getting all light colored clothes washed and dried in one day instead of pulling all night laundry duty because I don’t feel sleepy, I can go to bed feeling a sense of accomplishment. 

5.  Say NO when it is necessary without feeling the need to explain.  Sometimes I take on more than I can handle (because I’m still not sure what I can “handle”).  I will not feel bad for giving a person an honest, reasonable answer to their inquiry, even if it means that I cannot help them.   

6.  Sleep!!!  I will force myself to turn off all sources of noise and light no later than 11:00 P.M. to encourage better sleep habits.

7.  Ask for help!!!!  It is hard for me to recognize that I need help from someone else, but it is even more difficult to actually ASK them for it.  I will try to ask for the help that I need instead of throwing myself into a flare after trying to do everything all by myself.)

8.  Pray daily for a better understanding of God’s will for my life and the role that this illness plays in that.

I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future. (Jeremiah 29:11)